#beKause Fundraiser Event at FoxGardin

kammyskause 2 years Uncategorized Leave a Comment

Join us for a pre #kause fundraiser for this year’s event! Learn more about Kammy’s Kause. Have some free drinks, delicious appetizer by our hosts Foxgardin Kitchen & Ale, and listen to some killer live local music.

International 4p- Patient Registry Now Available

kammyskause 3 years 4P-, Education, Projects, Rare Disease Awareness, Support Leave a Comment

We are excited to share this beautiful news from our wonderful friend and one of our biggest supporters, Amanda Lortz: I am not really sure where to start, or how to put this together, so here it goes… Today is a tremendously emotional day for me because today we officially launch the International 4p- Patient Registry’s online portal via

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