21 May The Heartbeat of Kammys Kause
THROWBACK. Check out this video by the 4P- Support Group that highlights the beautiful heartbeat of Kammy’s Kause. We can’t believe we are heading into our 12th year. Thank you all for your support!
Kammy’s Kause began with one father’s desire to spread awareness about his daughter’s genetic condition called 4p-. This condition is an extremely rare chromosome disorder which causes severe growth and intellectual disability, microcephaly, seizures, closure defects (cleft lip or palate, coloboma of the eye, and cardiac septal defects) and other medical conditions and physical disabilities. Early intervention such as physical, occupational, and speech therapy have proven to be vital in the development of children with 4p-. The severity of 4p-, also known as Wolf-Hirschhorn Syndrome (WHS), varies and the amount of material deleted may range from about 50% of the short arm to a small break that can’t be detected by normal chromosome analysis. In 10-20% of the cases the deletion can occur as a result of a translocated chromosome in the parent. Because of this wide range of deleted material, the effect on our children varies widely. Some can walk, talk and assist in their daily care while others are not verbal and require constant care. Some are near normal height and weight while others who are 20-30 years of age weight only 35-50 lbs and are only 45-55 inches tall. The medical involvement also varies from near normal to severe heart and other problems.
This summer, Kammy’s Kause will celebrate 12 years of restoring hope and transforming lives across America in ways we never could have imagined. There is something unexplainable that happens within us when we reach out and help someone whose needs are greater than our own; this is the heartbeat of Kammy’s Kause. Our lives are like ponds and our actions are the rocks that we toss into those ponds – rocks that create ripples which are felt and appreciated by people in places we never believed we could reach.
The continued support from our community is imperative and YOU have the opportunity to stand up and use your voice to create a ripple by supporting the only fundraiser of its kind in the United States, Kammy’s Kause.
Kammy’s Kause is a 4p- Support Group sponsored event. All proceeds go directly to the 4p- Support Group which is a registered 501(c)3 charity organization.
For more information please go to www.kammyskause.org and www.4p-supportgroup.org
The majority of pictures used are courtesy of Photos by Jami.
We do not own the copyrights to the background music. Song by Sugarland titled Stand Up from their album The Big Machine.