3RD ANNUAL KAMMY'S RIDE

2011-07-27 06:42:17

Saturday, August 27th 2011

$20 for 150 miles

Start: Harley Davidson of Indianapolis

1st Stop: Harley Davidson of Kokomo

2nd Stop: Spykes Clinton County Harley

Last Stop: Kammy's Kause 2011

Registration begins @ 9AM - bikes roll out by 10AM. Breakfast will be provided by HD of Indy and 15% off for all riders in their store. Lunch will be provided by Spykes. Ride ends with music, drinks & hog roast provided by Ol Bod's. First 100 to preregister will receive a special gift bag. First 150 to arrive day of the ride will receive a free t-shirt.

Kammy's Kause Contact:	Jared Hiner: 1-317-796-7374
	Aleah Wade: 1-317-362-3997
	Kammyskause00@gmail.com
	www.facebook.com/kammyskause

KAMMY'S KAUSE 2011

2011-07-13 17:42:28

Hello -

My name is Jared Hiner and I am writing to you this year asking for your help. My daughter is Kamdyn Ann-Faith. She was born December of 2001 with a chromosome abnormality called 4p-/Wolf Hirschhorn. There are about 600+/- known cases in the world, so very little is known about this syndrome. I, my family and my band, Breakdown Kings, are presenting and hosting our 8th Annual Music Benefit on August 26th-27th, 2011 at the American Legion Park just north of Fortville, Indiana on Highway 13. (one exit north of Verizon Wireless Music Center on I-69) It is called "Kammy's Kause". This festival begins Friday evening at 6pm and runs through Saturday night. Donations are accepted. We have had over 40 Midwest bands/singers that have donated their time and talents to this worthy event over the past 7 years. We have had great turnouts the previous 7 years with every year getting bigger! We are seeking sponsorship and donations in order to keep this event going. We rent out the park and reserve the campgrounds for those who wish to camp. Our goal is to raise awareness about this syndrome, help with research, and assist families of children with 4p-. The money we raised last 7 years has helped over 25 families attend the bi-annual National Conferences for 4p-. There they received encouragement from other families of 4p- children and medical information from 4p- specialists in the medical field who attend these conferences. Kammy's Kause has been featured the last 7 years in the Greenfield Daily Reporter, Indianapolis Star, Nuvo Magazine, Intake magazine, IndyMusic.net, Jambase.com, IMN.net, Channel 13, & Fox 59 and is sponsored by Clear Channel Radio: X103-Q95-1260 WNDE, IMI, Dodd Technologies & Braden Business Systems.

This years musical lineup includes: Jennie Devoe, Landon Keller, Chad Mills & the Upright Willies, Henry French & the Shameless, Kalo, Joe & Alan, Goliathon, Kramus, Jeremy Johnson & the Bleeding Keys, Jenn Cristy, Midwest Hype, TJ Reynolds & the Freehand Orchestra, Blue Moon Revue, Breakdown Kings & Twin Cats.

KAMMY'S KIDZONE

2011-06-18 12:03:43

Kammy's Kidzone is an interactive area at Kammy's Kause for children of all ages. The Kidzone includes bounce houses, carnival games, prizes, face painting, a musical tent, small petting zoo and much more. The Kidzone is open Saturday August 27th from 12pm - 7pm. Cost is $5 for an all day wristband.

What Is Chromosome 4p- Syndrome?

Chromosome 4p- syndrome or Wolf-Hirschhorn syndrome, is a chromosome disorder due to partial deletion of the short (p) arm of chromosome 4. It is, therefore, also called the 4p- syndrome. Features of the syndrome include midline defects with a scalp defect, widespaced eyes, broad or beaked nose, oral facial clefts (cleft lip/palate); low simple ears with a dimple in front of the ear; small &/or asymmetrical head; heart defects; and seizures (that tends to diminish with age). There is severe to profound developmental and mental retardation. Some patients do learn to walk with or without support and some achieve sphincter control (by day). There is usually very slow progress in development. Most (nearly 90% of the cases of the syndrome are due to de novo (newly occurring) partial deletions of the short (p) arm of chromosome 4. In the remaining 10% or so of cases, one of the parents has a balanced chromosome rearrangement involving chromosome 4p from which the child's 4p- is derived. Parents of 4p- children should therefore have chromosomes studies themselves. The syndrome is named for the American Kurt Hirschhorn and German U. Wolf who independently found the 4p- chromosome abnormality in the 1960s.