4p- Support Group
The 4p- Support Group has been collecting and organizing biographical data on individuals with 4p- (Wolf-Hirschhorn Syndrome being the main syndrome) for almost 20 years. This information is transferred to our Bio CD and is updated annually. Additionally, our organization is in beginning stages of building an International Registry. We encourage all parents who have children with 4p- to submit biographical information to us every 2 years. All data is extremely useful, even if your child or adult with 4p- has passed away. International participation is greatly appreciated. The only requirement is that submissions must be sent to us in English.
Kammy's Kause 2013
My name is Jared Hiner and I am the father of Kamdyn “Kammy” Hiner, resident of Fortville, IN. I would like to first thank you for your time and consideration while reading the following letter about Kammy’s Kause, the largest fundraiser for the 4p- Support Group, a 501(c)(3) not-for profit organization. Kammy’s Kause is a two-day music festival started in 2004 to raise funds and awareness. To date, we have raised over $115,000 which has been donated directly to the 4p- Support Group.
Kammy's Ride 2013
CHECK BACK SOON FOR MORE DETAILS!
'There is something unexplainable that happens within us when we reach out and help someone whose needs are greater than our own; this is the heartbeat of Kammy's Kause' - Jared Hiner