4p- Support Group
The 4p- Support Group has been collecting and organizing biographical data on individuals with 4p- (Wolf-Hirschhorn Syndrome being the main syndrome) for almost 20 years. This information is transferred to our Bio CD and is updated annually. Additionally, our organization is in beginning stages of building an International Registry. We encourage all parents who have children with 4p- to submit biographical information to us every 2 years. All data is extremely useful, even if your child or adult with 4p- has passed away. International participation is greatly appreciated. The only requirement is that submissions must be sent to us in English.
Kammy's Kause 2013
My name is Jared Hiner and I am the father of Kamdyn “Kammy” Hiner, resident of Fortville, IN. I would like to first thank you for your time and consideration while reading the following letter about Kammy’s Kause, the largest fundraiser for the 4p- Support Group, a 501(c)(3) not-for profit organization. Kammy’s Kause is a two-day music festival started in 2004 to raise funds and awareness. To date, we have raised over $115,000 which has been donated directly to the 4p- Support Group.
Kammy's Ride 2013
August 24th, 2013 marks the 5th annual Kammy's Ride, a charity motorcycle ride. Kammy's Ride is a truly unique event that has become an integral part in the fundraising efforts of Kammy's Kause. The continued support from our community is imperative and YOU have the opportunity to help someone whose needs are greater than your own - Ride for the Kause! Please join us at 9:00am on Saturday, August 24th at Harley Davidson of Indianapolis (96th Street). Kickstands up by 10:00am - Breakfast will be provided by Harley Davidson of Indianapolis & 15% off for all riders in their store - Lunch will be served at Tipton Town Park - Ride Ends at the 10th Annual Kammy's Kause (Fortville American Legion Campground) with live music - First 100 people to pre-register online will receive a special gift bag - First 150 to arrive day of the ride will get a free t-shirt - Hamilton County Sheriff will once again escort Kammy's Ride!
'There is something unexplainable that happens within us when we reach out and help someone whose needs are greater than our own; this is the heartbeat of Kammy's Kause' - Jared Hiner
Bob Ewing and Bryan Beaver knocked it out of the park yet again! Check out this year’s flier for the 10th Annual Kammy’s Kause!!!! Mark