Projects

International 4p- Patient Registry Now Available

We are excited to share this beautiful news from our wonderful friend and one of our biggest supporters, Amanda Lortz:  I am not really sure where to start, or how to put this together, so here it goes… Today is a tremendously emotional day for me because today we officially launch the International 4p- Patient Registry’s online portal via

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The Heartbeat of Kammys Kause

THROWBACK. Check out this video by the 4P- Support Group that highlights the beautiful heartbeat of Kammy’s Kause. We can’t believe we are heading into our 12th year. Thank you all for your support! Kammy’s Kause began with one father’s desire to spread awareness about his daughter’s genetic condition called 4p-. This condition is an extremely rare chromosome disorder which

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